Wednesday, November 25, 2015

4 Months Post-Surgery!

Wow! I just noticed I haven't updated my blog since April! The short of it...The last of my reconstruction operations went very well! Nothing is ever perfect, but I feel better than ever, and I'm happy with the way everything looks, considering the trauma my body has been through - 8 major operations in 3 years! :-)

The scar from this operation is still very red and noticeable, but, as I've learned from all the others, it will fade to almost nothing, soon enough.  As soon as it has healed enough, I will finally get my tattoos (nipples). I'm still open to suggestions for designs, or any good original designs. Still leaning toward 3D flowers, the size of regular/small nipples. I need to find a really good artist, so bring on the names and numbers!

Saturday, April 25, 2015

Bla, bla, blog...

So, here we are again?! The short story...I have tumors on my lumbar spine, which are "probably benign." The doctor is sending me to the hospital for a full body bone scan on Tuesday, to see if there are any signs of bone cancer elsewhere, and ordered another MRI in 3 months to see if these spinal tumors change, in case they are malignant.  The concern is that the symptoms I went in with were almost textbook of breast cancer metastasis in my bones. After finding the tumors on my spine, benign or not, there is further reason for concern. 

In addition, the MRI shows multilevel, significant degeneration (since my last MRI only 13 months ago) along with bone spurs in my neck which have caused enough spinal stenosis now that it's caused my arms to be numb all night and most of the day, and they have become very weak. Fusion seems to be the best option, and he wants to do that as soon as I give the okay - within the next 4 weeks. I can't take off work for it, due to using all available leave for last October's surgery to remove the ruptured implant and scrape and rebuild my chest wall.  I will have to put off the fusion surgery for a while. No choice.

To top it all off, my final breast reconstruction/revision surgery has just been scheduled for July 29th.  Not looking forward to any more surgery, ever! But, such is my life.

Stay tuned...Thanks for all your kindness and support.

Thursday, March 26, 2015

MOVING ON...

Three years ago, I was celebrating my 45 birthday, just days after my double mastectomy.  That sounds like plenty of time to be done with it and move on, right!? I'm not blind to what goes through other people's minds when I bring it up. And I completely understand where they're coming from - I have those thoughts myself, often. Surprised?

Before this journey began, I had no way of ever imagining all that goes on emotionally during this process, and I don't claim to know what others who've done this go through each day, but THERE'S SO MUCH MORE to this journey than even I could put into words, in person, on a blog, or in a lengthy novel.

The first thing I noticed profoundly is how much people (myself included) judge others, without a clue to what the other is really going through, in any situation, not just fighting cancer.  I can't say that I don't ever judge anyone anymore. I wish I could achieve that! But, what I can say is that I find myself stopping and THINKING a lot harder about the judgements I make, whether it be before, during, or after, and I try to remember that I may have NO CLUE as to what they are going through or for what reason they are making the choices they are making.

Moving on...what does that really encompass? The changes aren't strictly physical. This journey isn't just about adjusting to ones new body and saying goodbye to a couple of body parts. Although that sounds drastic and hard enough to deal with, I also had to deal with the realization that someTHING tried to kill me -fast and sneaky, without any real provocation?! The hardest part of dealing with that is the fear! The fear that it's still lurking, hiding, somewhere deep inside of your own body, and maybe this time you won't catch it before it overpowers you and succeeds. Every single day, try as I may, that VERY REAL possibility pops back to the surface. Not all day, of course, but it may hit me while I'm cooking dinner for my children, or maybe as I'm driving them to school, or while I'm working with a student, or...In the middle of the night on my birthday, as I lie awake.

I've talked to many other women who've fought and survived breast cancer, and everyone of them has expressed the same fear. It's what we live with, day in and day out. It's like having a murderous stalker living right inside your own body! You can't run and hide from it. You don't forget about it! You have to stand tall and fight it and THE FEAR OF IT every single day, and pray that you find it early if it does come back! Unfortunately, recurrence of some form of cancer seems common among survivors.

Don't misunderstand me, as least for myself, it's not the same as a fear of dying really. For me, it's more about how dying, from cancer, could affect my friends and family. When I was a young girl, I watched my close friend's mother die of lung cancer. I was there, in the doctors office, when he diagnosed her and told her she had only months to live. I watched what the family went through day after day, and I watched her die a slow, very painful death. I knew then that THIS was the most evil kind of death, and that no family should ever have to experience it!

I could write so much more tonight. My head is filled with thoughts of what I'd like to say to those dealing with breast cancer and those trying to understand what someone they care about is going through, but the reality is I should try to get some rest before my 48th birthday - one I wasn't sure I'd make it to! Hallelujah! :-) I'm still here! Keep fighting that silent stalker!